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Marystown youth Ethan Hunt preparing for another heart surgery

The Hunt Family, Standing (l-r) Rick Hunt and wife Lori. Sitting (l-r) Eight year old Liam Hunt and his brother Ethan Hunt
The Hunt Family, Standing (l-r) Rick Hunt and wife Lori. Sitting (l-r) Eight year old Liam Hunt and his brother Ethan Hunt

Marystown, NL- It is a trying time for Rick and Lori Hunt.

They are waiting for a call from the Sick Children’s Hospital in Toronto that their son Ethan will be going for surgery.
“When I’m at work, every time Rick calls me I think about, ‘I wonder did he get a call,’” she told the Southern Gazette in a phone interview. “And when the phone rings here Rick is thinking the same thing, looking at the (phone) number to see who it is.”
Ethan, age16, was born with Down syndrome, and a heart condition called Trilogy of Fallot.
“(He) had two holes in his heart, and his main artery is narrowing,” Lori explained.  
Ethan has had three heart surgeries in the past and is preparing for his fourth.
“When he had surgery when he was two months old he was left with a leaky valve and this valve has got to be replaced because it’s been 16 years now since he had his first surgery,” she said. “The valve is still leaking so they’ve got to repair this valve in his heart.”
Three years ago Ethan underwent a procedure to try and repair his pulmonary artery, which keeps narrowing.
“They put the balloon up through his groin into his heart to try and (expand) the artery,” she said.
The procedure did not take and the following day Ethan’s artery had narrowed again.
 
Impact
Rick said that a lot of children with Down syndrome have problems with their organs.
The Hunt’s explained that the heart condition is having an impact on Ethan’s day-to-day activities.
“It affects him a lot more now than it did before,” he said.
Ethan’s parents said he is easily tired, sleepy, has shortness of breath and broken sleep.
“What’s happening is this main artery is narrowing and the oxygen is not getting to his heart,” Lori said.
The family received a call from the The Janeway Children’s Health and Rehabilitation Centre in St. John’s two weeks ago explaining Ethan was a candidate for surgery, but no further details were given at the time.
 
Waiting
“It is a waiting game for us now,” Rick said.
The family was told that they could receive a call any day.
The family is preparing but it is hard to know what to expect given the uncertainty of when they will be going or how long they will need to stay in Toronto.
“It (is) determined by what they’ve got to do,” Lori said.  
Rick added, “I guess they won’t know until till they get inside and see what they’ve got to do, how long it is going to take them to do it and how long a recovery it is for him.”
Lori also said, “Whether they got to go through his chest or whatever, we don’t know until we get up there.”  
Rick and Lori shared their hopes for this surgery.
“That everything go great — everything will be fixed and Ethan get better, that’s all that matters, that he get better.”
 
Appreciation
The Hunt family extends thanks to Rosetta Mullins for all her help.
“Biggest bouquet of flowers in the world going out to her,” said Lori.
Mullins organized a fundraiser at 5 Dock Row to help raise money to assist the family with the costs when the time comes to make the trip.
“They got a band coming from Grand Bank,” explained Rick. “The Grand Bank Rovers.”
Lori said the band is excited to take part in the event.
“Rick just went up to the garage and told Rosetta that we got a call for Ethan to have to go to Toronto,” explained Lori. “With that she took it upon herself that day, and started that day to getting everything on the go.”   
 
colin.farrell@tc.tc
@Colin_TCMedia

They are waiting for a call from the Sick Children’s Hospital in Toronto that their son Ethan will be going for surgery.
“When I’m at work, every time Rick calls me I think about, ‘I wonder did he get a call,’” she told the Southern Gazette in a phone interview. “And when the phone rings here Rick is thinking the same thing, looking at the (phone) number to see who it is.”
Ethan, age16, was born with Down syndrome, and a heart condition called Trilogy of Fallot.
“(He) had two holes in his heart, and his main artery is narrowing,” Lori explained.  
Ethan has had three heart surgeries in the past and is preparing for his fourth.
“When he had surgery when he was two months old he was left with a leaky valve and this valve has got to be replaced because it’s been 16 years now since he had his first surgery,” she said. “The valve is still leaking so they’ve got to repair this valve in his heart.”
Three years ago Ethan underwent a procedure to try and repair his pulmonary artery, which keeps narrowing.
“They put the balloon up through his groin into his heart to try and (expand) the artery,” she said.
The procedure did not take and the following day Ethan’s artery had narrowed again.
 
Impact
Rick said that a lot of children with Down syndrome have problems with their organs.
The Hunt’s explained that the heart condition is having an impact on Ethan’s day-to-day activities.
“It affects him a lot more now than it did before,” he said.
Ethan’s parents said he is easily tired, sleepy, has shortness of breath and broken sleep.
“What’s happening is this main artery is narrowing and the oxygen is not getting to his heart,” Lori said.
The family received a call from the The Janeway Children’s Health and Rehabilitation Centre in St. John’s two weeks ago explaining Ethan was a candidate for surgery, but no further details were given at the time.
 
Waiting
“It is a waiting game for us now,” Rick said.
The family was told that they could receive a call any day.
The family is preparing but it is hard to know what to expect given the uncertainty of when they will be going or how long they will need to stay in Toronto.
“It (is) determined by what they’ve got to do,” Lori said.  
Rick added, “I guess they won’t know until till they get inside and see what they’ve got to do, how long it is going to take them to do it and how long a recovery it is for him.”
Lori also said, “Whether they got to go through his chest or whatever, we don’t know until we get up there.”  
Rick and Lori shared their hopes for this surgery.
“That everything go great — everything will be fixed and Ethan get better, that’s all that matters, that he get better.”
 
Appreciation
The Hunt family extends thanks to Rosetta Mullins for all her help.
“Biggest bouquet of flowers in the world going out to her,” said Lori.
Mullins organized a fundraiser at 5 Dock Row to help raise money to assist the family with the costs when the time comes to make the trip.
“They got a band coming from Grand Bank,” explained Rick. “The Grand Bank Rovers.”
Lori said the band is excited to take part in the event.
“Rick just went up to the garage and told Rosetta that we got a call for Ethan to have to go to Toronto,” explained Lori. “With that she took it upon herself that day, and started that day to getting everything on the go.”   
 
colin.farrell@tc.tc
@Colin_TCMedia

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